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論文
- タイトル
- タイトル（英）
- [A proposal of a novel palliative care scale and analysis of suffering in amyotrophic lateral sclerosis].
- 参照URL
- https://researchmap.jp/ynakayama/published_papers/39102327
- 著者
- 著者（英）
- Toshio Shimizu,Naoko Shimizu,Kanae Onozaki,Tamami Arai,Hideki Kimura,Ryo Morishima,Kota Bokuda,Takako Saotome,Arata Sato,Yuki Nakayama,Kazushi Takahashi
- 担当区分
- 概要
- 概要（英）
- OBJECTIVE: We proposed a novel palliative care scale (Amyotrophic Lateral Sclerosis Palliative Care Scale: ALSPCS) for patients with ALS, and analyzed the suffering reported by patients. METHODS: Thirty-one patients participated in the study. The ALSPCS has 15 items to evaluate physical and psychological suffering; patients scored their subjective suffering on a scale of 0-5 for each item. This study analyzed 13 of 15 items. RESULTS: The mean scores obtained from the patients were as follows: 'dyspnea', 2.5; 'pain', 2.4; 'restlessness', 2.4; 'thirst', 3.0; 'burning sensation', 2.0; 'choking', 2.0; 'nausea', 0.4; 'constipation', 1.5; 'insomnia', 2.5; 'anxiety', 3.5; 'loneliness', 2.4; 'irritation', 2.1; and 'communication difficulty', 2.3. Multiple correlation analysis using Spearman's rank correlation coefficient showed significant correlations of dyspnea with restlessness, thirst, burning sensation and anxiety; of restlessness with dyspnea, thirst, loneliness and irritation; and of anxiety with dyspnea, thirst and loneliness (P < 0.0038 after Bonferroni's correction). In the principal component analysis, every item showed a positive loading value in the first principal component. Dyspnea, restlessness, thirst, anxiety, loneliness and irritation had loading values >0.7; thus, these symptoms might be the main features in ALS patients. The total scores or each ALSPCS score showed no significant association with post-assessment survival period. CONCLUSION: This study, using ALSPCS, showed that the subjective suffering of ALS patients was variable and strongly correlated with each other. Appropriate and comprehensive assessment of physical and psychological affliction with ALSPCS could be potentially useful in verifying the effectiveness of palliative care for end-of-life stage ALS patients in the future.
- 出版者・発行元
- 出版者・発行元（英）
- 誌名
- 誌名（英）
- Rinsho shinkeigaku = Clinical neurology
- 巻
- 61
- 号
- 6
- 開始ページ
- 361
- 終了ページ
- 367
- 出版年月
- 2021年6月29日
- 査読の有無
- 招待の有無
- 掲載種別
- 研究論文（学術雑誌）
- ISSN
- DOI URL
- https://doi.org/10.5692/clinicalneurol.cn-001571
- 共同研究・競争的資金等の研究課題
研究者
中山 優季
(ナカヤマ ユキ)